Kathy and everyone else is feeling pretty exhausted. We are having our ups and downs. The visit to the lake houses seems like it went well but Kathy returned pretty tired. On Tuesday she decided that it would be a good idea if she went to Hospice, just for a day or two to give Julie and the rest of the care giving team a break. On Wednesday, they got there and realized that Kathy would be in the room by herself most of the time unless one of us was there. So that didn't work out. They packed up and come home really discouraged, tired and emotionally spent. The reality of seeing hospice, even though it is a lovely and caring place, was an emotional reality check. It rocked our little life raft.
There was a big meeting that night. Pam remarked that it has been exactly 7 weeks since our first meeting when Kathy told us she needed help because she could no longer transfer by herself.
In many ways, that seems a short time... and in many ways a very long time.
There is not a lot that we can report right now. Kathy is "listing" to one side a bit more and tends to close her eyes and drift off on a regular basis. She often says that she can't tell whether it is the drugs or the brain tumor but her thinking is getting fuzzier.
I wish I had a happy note to end on. The only thing that I can say is that with Kathy, you never know. Hopefully we still have a few bright moments ahead of us.
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Continuing to keep Kathy, Julie and her loving team in my thoughts and prayers.
ReplyDeleteDotty
Sending lots of love to Kathy and Julie...I think of you, Kathy every day. Love, Mary
ReplyDeleteI love you Kathy!!!! You have always been an inspiration for me!
ReplyDeletePatty
Well goddamnit, all to hell, can't get my comment posted. Perhaps if I cuss enough!
ReplyDeleteLove you Kathy...you have been a big inspiration in my life. I'm doing some stuff here on the Gulf Coast because of you. Dang that oil!
Patty Johnson
Sally Ringo sez:
ReplyDeleteA delightful little fragment from John Keats, just to share a moment of beauty with all you wonderful people. God bless to Kathy and Julie, and everyone. Kathy, you stood tip toe upon a huge mountain for us all.
I stood tip-toe upon a little hill,
The air was cooling, and so very still,
That the sweet buds which with a modest pride
Pull droopingly, in slanting curve aside,
Their scantly leaved, and finely tapering stems,
Had not yet lost those starry diadems
Caught from the early sobbing of the morn.
The clouds were pure and white as flocks new shorn,
And fresh from the clear brook; sweetly they slept
On the blue fields of heaven, and then there crept
A little noiseless noise among the leaves,
Born of the very sigh that silence heaves:
For not the faintest motion could be seen
Of all the shades that slanted o’er the green.
There was wide wand’ring for the greediest eye,
To peer about upon variety;