This blogspot has been set up to honor Kathy!

Wednesday, June 30, 2010

Letter from Julie to all

Kathy is sleeping at the moment, so I wanted to take a moment to thank you all for your expressions of love and
support for Kathy and me. When writing this post on paper first, I started to make a list of people and the ways in
which each of you have given to us. It became obvious very quickly that so many of you have given of yourselves in
so many ways, too innumerable to count. All of you have given according to your individual personalities, vocational skills, and creative expression, some in time spent with us, many behind the scenes, with delicious meals, etc. Each of you are individual expressions of divine kindness, compassion, and love. None of these acts are unnoticed by us, and Kathy and I are filled with gratitude and love for each of you.

Kathy continues to be pain-free (mainly because of the methadone and morphine). Her physical body is failing but her spirit remains strong. I don't know how much longer she has on this earth, but she is very "ready to go", and very much at peace. The experience of this process for those of us left behind is quite different for each of us. As you can imagine, for me, this has been incredibly difficult emotionally. There has been overwhelming grief, fear, anger, on the one hand, on the other, tranquility and peace.

Kathy and I have had the last month to say the things that needed to be said, express the things that needed to be expressed, and do the things that needed to be done. Now, we can just 'be". This is a rare opportunity . We both feel very blessed to be able to have this time together.

Spiritually, this experience has been and will continue to be transformative for all of us, in ways unimagined and unpredicted. It is an incredible journey, this death process. It's mind blowing and heart opening. So, thank you all for sharing this experience with us. We love you all.

Julie and Kathy

Tuesday, June 29, 2010

post from Kathy

I love you Luz. Love what you said. Sorry that I can't write more. Tell Rich that I love him. Take care of him. No more to say...nothing more profound to say

Kathy is still in control!!!!

Tuesday... been out of town

Sorry to have stopped posting for a while. I was out of town but I see that people have been busy commenting and sending their thoughts and energy to Kathy.

I have not spoken to Kathy or Julie for several days but as I understand it, things are still pretty much the same. Carol called to tell us all that Kathy has called a meeting for tonight so we will all be gathering over at the house at 6pm.

We will let you know.

Will you post this. I know is not well written but is a way to put my feelings ... Thanks...Love Luz

There was a story
About a beautiful woman.
She was so special
Everybody wants to dance with her…

When you dance with her
You fell the peace
The joy
And the light.

Everybody wants to dance with her…

One day
She was tired of dancing
But she do not want anybody sad,
Anybody to stop dancing.

She decide to trick them.
She said: Closed your eyes ,
Imagine I am in your arms when you touch a child
Imagine I smile when you see a smiling person
Imagine I kiss you when the rain is over you
I will surprise you in every fresh herb
In every flower blooming every day
I am going to be there.

Still everybody wants to dance with her
But I imagine
All the love
I imagine you will be with me
In my heart
In my soul
In every heartbeat
And I will imagine you every day
Love you Kathy

Love
Luz 6/27/10 Culebra , Puerto Rico

Thursday, June 24, 2010

Quick update... Thursday

No real news to report. Kathy is still comfortable and everyone is working hard to make the time go easily. There are daily ups and downs. Kathy seems to tire more easily and has said that she is not taking any more trips. I guess we will see 'cuz with Kathy ... you never know.

I finally saw Avatar, the movie, last night. There is a scene where the doctor/scientist is wounded and dying. The hero is carrying her to this beautiful place to see if the people there can heal her. She rallys for a moment, looks around and says, " I should take some samples." It reminded me so much of Kathy.

One last note - brother Rich sent a 19 pound bread pudding overnight from Puerto Rico. Kathy ate so much her stomach hurts.

From Karen Ahler's granddaughter

When I visited with Kathy she and I talked of my three year old granddaughter, Laurel, the newness of her spirit with fresh memories of the Source. Yesterday, Laurel noticed that I had replaced her picture on my computer desktop with an image of Kathy and wanted to know why. I explained to her that Kathy was very sick and Laurel offered to pray for her. A very heartfelt “talk to God” followed asking for healing and relief from pain followed by an amen. She started to walk away but quickly turned back saying that she had forgotten something. She asked me to tell Kathy not to be afraid, that it would be alright because “we are all there to take care of her.”

I hope there is some comfort in this message from Laurel. Please give Kathy our love.

Karen

Karen Ahlers, President

Putnam County Environmental Council, Inc.

Tuesday, June 22, 2010

My Poem for Kathy

Richie and Kathy’s poetry
Was really quite bright
I will try the same
As it feels only right

I tried to get attention
My cancer was no rumor
Now you’ve gone and beat me
With a little ole brain tumor

Everyday I go to radiation
And fry my right titty
So now I will get affection
With this silly little ditty

Kathy I love you
My sister-in-law friend
This life is almost over
But the next will never end

Your dad and your mom
And your big brother too
Are all waiting patiently
To say welcome to you

You’ll walk and you’ll run
And spend time riding a bike
You’ll spend every moment
Doing things that you like

No pain and no sorrow
You’ll feel only pleasure
knowing this as your truth
Gives us something to treasure

We’ll take care of Julie
And make sure she’s alright
Maybe she’ll learn to relax
And not be so uptight

When our lives are through
For each of us you’ll appear
And finally it will be happiness
Causing all of these tears

In the spirit world we’ll laugh together
I’ll see you Kathy I know its true
In the meantime my boob will get attention
It will be magnificent to steal it back from you!


Love You Kathy! Leslie

Monday, June 21, 2010

The life raft

Dinner spreadsheet

I don't know why but sometimes you have to refresh (or reload) the page if you get an error or are asked to sign in when you click on the link.

A poem from Kathy to Rich

Roses are red
Violets are blue
I was here first
You know that it's true

I'll be first again now
but in a blink of an eye
you'll be here with me too
in time for a sigh

Here time seems to crumble
there is no first or last
You'll be with me always
as you were in the past

There's no words to tell you
Just the feelings you know
I love you for always
The connection still grows

Kathy

Saturday, June 19, 2010

From Randi.... Saturday morning early

A group of us accompanied Kathy to the prairie today (north rim) where we were met by a ranger who guided us onto the trail by jeep, followed by Kathy's and Julie's van---all the way down to the observation tower.  Prairie still had a little bit of morning dew just beginning to evaporate off, and slight touch of a breeze.  Kathy was overcome with emotion to be in the midst of her beloved prairie, so alive with every bit of overlapping lifeform.  Willie carried her right up the top of the observation tower and once we were up there we all were excitedly exclaiming away---woo hoo! look at the great blues!  look at the whooping crane! where are the bison?!  blah blah blah  until Kathy finally beseeched us to shut up and just listen to the quiet.  And then we heard the sandhills chattering, the redwinged blackbirds squacking, the gallinules peeping, the cicadas making their cacophonous racket....  The white lotus flowers were in full bloom everywhere standing taller than I've ever seen them, the purple of the pickerels punctuated everywhere we looked. We saw a small swallow giving hell to a large blackbird midflight forcing him right out of her teritory.  Kathy had a big beautiful cry with Julie up there on that observation deck seeing, and smelling, and hearing so much.  There was a lot of beauty and wildness in the stillness all around us, and a lot of emotion in the air as we quietly disembarked from the tower and started for home.  We all knew just how lucky we are.     Randi

Life Raft - drifting into the weekend

First a little bit of housekeeping -
  • Kathy has a huge heart and doesn't want to turn anyone away but please, please do not come over without contacting someone first to see if she is up to it.
  • I put the Dinner link on the side bar of the blog if you want to sign up.
xxxoo from Kathy and Julie.
....

We are still just out here floating around together. Kathy is still the leader and still giving directions but our little life raft is being steered by currents beyond our control and it is not bad. Our world is cool and we have plenty to eat and drink thanks to many of you out there. We drift and occasionally pitch and toss.

Last evening when I arrived, Kathy smiled a kind of an evil grin and said she was having "roid rage". Too much steroid in the mix makes her pretty anxious/angry. Luckily I missed that storm. Everything was really great. Nancy McIntosh and Judy Martino were a hit with their manicotti and flan. Everyone was full and smiling. Nice.

As we gathered around Kathy in the big bed. I picked up small stories from the day. Kathy awoke weeping which I guess has been happening a little more often. She is most sunny with a chance of rain. She seems to be worrying less about the mundane details of life - checking accounts, bills, projects, etc. She admitted to being scared sometimes of what is beyond our vision. She said that sometimes when she can close her eyes and just let go, she feels the wonderful place, the place of love and compassion that she visited during her near death experience immediately following her accident. She is frightened about letting go but happy to be going to this place where she truly believes that she will be happy.

We floated awhile on the big bed of a life boat. We visited old memories and friends. Kathy told us some funny stories from her residency and spoke kindly of Mel Greer whom she regarded as her mentor. She talked about her death and the fact that she feared she might have a seizure. She told us all what to do if she did so that we wouldn't freak out. We asked about her brain and how she thinks things will happen. We tossed gently from one topic to another.

Julie brought Kathy's pills to her and Kathy kind of grilled her about them. At one point she took a pill out of her mouth and they had a discussion about dosage etc. As you can see, she is still very much on board with us.

Julie has been really amazing. The first week or so of this trip, she seemed completely overwhelmed - and really - who wouldn't be? But there is something really different now about her. She has a calm kind of almost smile on her face much of the time. Really, even before all this happened, most of us would not describe Julie as calm. Julie has always been a bit of a worrier and just possibly, having so much to worry about has pushed to a new place, her own spot of calmness amidst the turbulent motions of our raft.

It is a journey and it is not fun but the wonderful thing is that we are all holding hands, holding on to each other to keep anyone from falling overboard. We shift our weight as the raft lists to one side, someone gets too tired and someone else moves in to reestablish our balance so that we can continue this journey with all safe on board.

Wednesday, June 16, 2010

Wishes from Kathy

We had a good evening together last night (Tuesday). Kathy (and everyone!) is eating well and she seems happy most of the time. Being without pain has made a world of difference. She is taking a fair amount of medicine and she is sometimes a little fuzzy but she is still Kathy and continues to want to steer the ship - giving directions and making plans.

Last night she said once again that she really wants to use this time to promote fighting "nature deficiency disorder". She is especially adamant about trying to get kids out in nature. I told her that I had not put any links on her blog to other sites because I thought her blog was too intimate. She then had me write down a list of programs that she wants everyone to know about and support. So here it is!

  1. Cultural Arts Coalition
    The Cultural Arts Coalition (CAC) developed as an outgrowth of the Annual Fifth ... of the rich African American culture of Gainesville through the arts. ...
  2. Girl Power -
  3. Environmental Ambassadors
  4. Inner City Outings - Sierra Club
  5. Little Orange Creek Conservation Historical and Educational Center. (LOCCHEC)
One last note. We have heard that Kathy will be honored by Alachua County at their regular meeting next Tuesday.

Tuesday, June 15, 2010

From Rich (Kathy's twin)














TO MY BEST FRIEND
TO MY SISTER
KORAGE KATHY
From the same ticket holder!


I trust you
I see you
I feel you

I know you are a seeker.
You know I will support you,
on your adventure
to see things better.
We must fulfill our nature to create.

IT, always sees the right answer.
We will help those who tell the truth
from their heart.
We will protect those who understand.
Breaking and exploring the limits
of honesty, is to be a true crusader.

To make all the parts fit and be inclusive
you have to be a master at answering.
To be supportive you have to wait
until the person is asking the right question.

We fight the battle
We shine the light
And hope there is no way
Things will be dark

I LOVE YOU!
Rich

Is it Tuesday?

It's hard to keep track of time. We are all floating along together with Kathy - just enjoying each other and watching as things fold and unfold.

Today Lorelei came over with a dark pink nail polish. It had a special name something like "you are the kabuki". It was her ingredient to add to mix of today. She did Kathy's nails, then mine, Julie's. I can't remember if she did Randi's. It was a small gift to us all. And there are so many people giving them. Carol takes the recyclables and trash to her house when it starts to spill over the top. Randi drops by to help Kathy write. Julie and Sue do everything. People bring scrumptious food every night. There are too many people to name right now though I hope that we will all take the time to celebrate the generosity that this community has shown.

Kathy is at still peace but it has changed. She was at peace before but in a hurry to leave. Maybe it is that she is finally not in pain or maybe it is just another step in the process. Whatever it is, it is good.

She has also regained the use of her left hand and arm. The steroids are probably responsible. The problem is, they also make her cranky so she and Sue and working to find a balance.

Tonight's plan is to go and see the sunset over Bivens. It should be fun. Kathy was in good spirits when I saw her earlier in the day.

We make plans but everything changes so we will just wait and see and watch as the next gifts fold and unfold.

Monday, June 14, 2010

Monday Evening

Stopped by after work. Ed, sister Sue's husband had left today, and a gang was assembled -another party.... They were scarfing down Ellen and Matt's burritos. Kathy raved @ how delicious it was :) Kathy was full of humor, but a bit foggy. Not too foggy to notice I wasn't 'quite right'. She said I worry about you - 'let go and be @ peace'. How could you not listen...Seems to be my new mantra. Shirl girl got Jane Windsor's photo card for the pictures she shot Saturday morning - so I look forward to the next post!!! Love, Carol

Another Sunday

Kathy and family/friends went to UCG again this Sunday. I wasn't there but I was told it was another good service. Kathy was greeted once again by many well wishers. The troop headed back home after that and had a mostly quiet day.

Julie went upstairs to try and catch up on some sleep. Evidently Kathy was really thristy all night and kept waking up. She kept telling Julie that she wasn't in pain which is of course wonderful.. it just ended up that Julie was quite tired in the morning.

Lorelei, Patty and Kathy spent some time hanging out in bed. They called me and asked me to bring over the dvd of my birthday party (yes we video tape everything!). Kathy got the super "Ham" award for that night. Sadly, that was the last event that she took part in before the whole tumor thing started to kick in. I can imagine the three of them though, laughing with Kathy about her performance. And not just her.. Lore and Patty were great in the skit as well... just a big group of hammy friends!

The hospice doctor comes today to adjust Kathy's meds. She is really happy to be pain free but it is making it hard for her to think clearly and that is frustrating for her.

Yesterday, when she thanked me for bringing over the dvd, I said "goodbye, see you later". She smiled and said with a little look ... "that's a good way to put it."

Sunday, June 13, 2010

Saturday Morning Journey

As we drove towards Prairie Creek Ranch this morning, as we began to drive on the ‘back roads’, I began to feel this is truly Florida in its most beautiful manifestation. It’s what you hear in the Florida Folk songs…how lucky we are to have it preserved in our own back yard. A gorgeous duckweed covered pond skirted the dirt road, that lead to an open green pasture. A magnificent oak tree was standing sentry, as we drove up, as if to safeguard this sacred ground. This, fortunately, has been protected – forever -and this will become the final resting place for Kathy. Kathy, thank you for your courage to lead our way for green burials in Alachua County. I love you and will join you, Carol

Saturday, June 12, 2010

Green and Peaceful

We love Kathy and want to her stay but we have all moved forward with her and are looking to how Kathy would like to be buried. I hope that you can read this with the love that we all have and not feel like it is too soon to be talking about this. It is of course, too soon. We don't want her to go but she will and she wants it to be done to the best of her ability. So today, we (including Kathy) gathered at the spot where she will be buried.

Hutch, Freddie Johnson and Susan Marynowski, of Conservational Burial Inc (CBI), have all been working behind the scenes to help make Kathy's desire for a green burial happen. CBI is a newly created non profit dedicated to providing a green space that people may rest in forever. Hutch and Freddie have been pushing paper feverishly in Tallahassee... and it worked. They received the necessary document yesterday.

Kathy will have the honor of being the first green burial in Alachua County. CBI has purchased more than 70 acres near Prairie Creek Ranch. It is really beautiful. The are oaks and wild flowers everywhere. Birds of every make and model were singing and chattering in the background. A swallow tailed kite sailed over head as Kathy and Hutch spoke about the ultimate way to "Go Green". Meg Niederhofer (City Arborist and also married to Hutch) picked out a beautiful magnolia which will be planted on Kathy's burial site. It may sound weird or maudlin but it wasn't - it was sad yes, but mostly peaceful. So it is done and we all feel better prepared to make this the journey Kathy wants.

BUT I have to add - she looked really good this morning. The hospice doctor gave her several prescriptions for pain and Kathy said that yesterday was the first day in the 22 years since her accident that she did not have pain. She slept the whole night through.. another milestone !

Friday, June 11, 2010

To all those who have contributed dinners -- What a fantastic gift and great relief it is to know there is a steady stream of dinners coming in!!! Kathy's family and her support team really appreciate all of you cooks that have delivered such wonderful nourishment to sustain us through this amazing journey. In appreciation to you all, Carol

A good night!

We are riding the waves of emotion like a ship in a storm. A call went out yesterday via Carol (our call girl) for us to all come over at 6pm. I feared the worst and tried to prepare myself. The word on the phone tree was that it was getting increasingly hard for Kathy.

Kathy was in bed with a big smile and a welcome. Wow. What a relief to get another day for all of us and Kathy to enjoy one more night together. The reason for the celebration was that it was Richie and Luz's last night with us. They are returning home today. We will really miss them both. Linda Bobroff delivered a fabulous meal and Julie went crazy ordering appetizers from The Jones. We all sat on the back porch in the heat of the night sweating, laughing and just enjoying the hours together.


Thank the stars, your god/goddess, the trees whatever. As Mimi said last night, the love and thoughts that Kathy's friends around the world are sending are making these days easier.

Thursday, June 10, 2010

A little tougher

Things are getting a little harder right now for Kathy. She is in more pain and she is very tired. She and Julie are going to try and have a quiet day today - just the two of them.

They had two bigs day on Tuesday and Wednesday with lots of meetings. Kathy wants to make sure all the details are taken care of. She is so dedicated. She doesn't want to leave anything undone especially when it comes to her environmental work.

We have heard from several groups, specifically Alachua Conservation Trust and Putnam Land Conservancy that several bridges and trails are going to be named in Kathy's honor so that her work will be continued to be acknowledged for decades to come.

Tuesday, June 8, 2010

The Monday Night Spectacular

I don't really have the words to describe last night... amazing, powerful, touching, overwhelming - don't begin to describe it.

Food and people started to pour in the doors at the Hipp before 6pm on Monday. It was hot and chaotic but everyone was easy going and patient. We just went with the flow and waited for whatever was going to happen. There was food and people absolutely everywhere!

By the time Kathy arrived at 6:30ish it was apparent that we were way beyond the capacity of the cinema. Thanks to a few words from Hutch that morning, we had decided to have the mainstage set up just in case. It seats nearly 300 and it was pretty full.

It was calm and cool in there until Kathy rolled in. The crowd erupted and gave her a long standing ovation, one of at least 3 or 4 that evening. Mayor Craig Lowe read a proclamation and honoring Kathy by declaring June 7th, Dr. Kathy Cantwell day. He then went on to give her a key to the city, an honor not often bestowed. Another standing ovation.

GRU then made a short presentation honoring Kathy with a beautiful plaque in honor of all her hard work for our community. Another thunderous round from the audience.

Hutch (Robert Hutchinson, ACT) then spoke about Kathy and land conservancy. He noted that he and several other activists met for about 3 hours earlier that day while Kathy explained to each of them what was what and what still needed to be done. And then yes, another uproar from the crowds.

Kathy then read a short speech filled with "Cantwell" power. She told us of her love the nature and the important part that it plays in her peace with the world and with her own destiny. She admonished/encouraged us to get out in nature, to take moment regularly and drink it in quietly. And she made some funny jokes.... Another long round of applause.

Julie was sitting next to Kathy throughout and had a wonderful smile on her face. The first I have seen in a month. It was great to see. Although admittedly not a public speaker, Julie rallied and read a beautiful poem that I hope someone will post for you. More applause.

People said their thanks and goodbyes to Kathy and the public part of the evening was over. Close friends and family then went down to the cinema to watch a couple of short videos. The first was one that I had made for Kathy's 60th birthday (last September). The second was the video that Patty shot of the skit we put for that same celebration. Laughter ruled the end of the evening. My cheeks were cramping from smiling.

Thank you Hippodrome (Mary, Rocky, Robert) for all the support last night and thank you friends of Kathy - you know who you are.

Sunday, June 6, 2010

Gainesville Sun article

Here's a link to an article about Kathy in today's paper (Sunday).

Saturday, June 5, 2010

She's doing well

I have lost track of when I last posted. Things have been really busy.

The most important thing for you to know is that Kathy is still Kathy. Her mind is still great and she has even regained the use of her left hand. She still cannot transfer but is feeling a little more comfortable. The change in meds has been good. Her plan is still the same though. She is not seeking any type of treatment. Her belief is still that she will be leaving us soon.

She has been busy at home getting things organized and talking with people. It is overwhelming and tiring for her but she is a trooper. Old friends from out of town are here and I know Kathy has enjoyed seeing everyone again.

Last night we showed some very old videos of our crazy antics from the early 80's. We laughed hysterically at parts. It was also poignant since this footage was before Kathy's accident. Some people at the house, had never seen Kathy without her chair. At the end of the evening about 8 of us ended up in bed with Kathy (yes a giant bed). We had a wonderful sweet time reminiscing about the good old days. Kathy talked about her life belief and why she is at peace with her life and its path now.

I spoke to Kathy this a.m. about her party on Monday. She said she is over the "drama" and just wants this to be a party (no tributes) and that she also wants to use it as an opportunity to promote Putnam Land Conservancy. That made me laugh out loud. Only our Kathy would use this occasion for land issues!

All of Kathy's friends are welcome Monday. Bring a dish to share and your own plate and eating utensils. We are going to try and eat at 6pm promptly (ha!) so that we can celebrate and be out of there before we wear Kathy out too much.

That's about it for now.
Kathy et al, send their love.

Thursday, June 3, 2010

Party for Kathy on Monday, June 7th

  • Where: Hipp Cinema
  • When: Monday , June 7th, 6 p.m.
  • Old Videos, Music, Dancing, Laughing, Crying , Celebrating.
  • Potluck Dinner, please bring a plate and eating utensils to help avoid adding to the landfill.
Theater’s bar will be open for alcohol and non-alcoholic beverage purchase.

This party may be subject to change, depending oh how Kathy is doing that day, so keep tuned in to your email.

But, please plan to make it to this if at all possible. Be there now! Celebrate Kathy and this amazing community!

Wednesday, June 2, 2010

Rainy Day Wednesday

Another busy day. Kathy and Lorelei walk every Wednesday to the Farmers Market. They told Rich and Luce it was only a few blocks but I googled it... it's a mile (each way).

Kathy said it was going to rain but everybody else said.... Nah.

They stopped at the Thomas Center to see the art show. Lorelei has a lot of work in the current show. It is great. You should go see it if you can. Then they proceeded to the Farmers Market. They got drenched several times but as Kathy said, it made getting through the crowd in a wheel chair easier... since the rain chased away the crowd.

Christy brought over a great dinner which was followed by flan from Lori and cupcakes from Caroline.

Kathy and Julie send their thanks to all of your for your thoughts and kindness.

Check out the slide show on the right side of the page. Click on it and it will get bigger. There are a bunch of pictures from our day out on the land and at the lake house. I threw in one or two from my party. Kathy was in a skit about my life and how I never get away from my computer. She was amazing hammy! Who's surprised at that?

Dinners

Miranda has kindly created a speadsheet where you can sign up for dinners for Kathy and the gang. If you are interested please check it out. Thanks!

http://spreadsheets.google.com/ccc?key=0AgYf_hb9dg9mdGkyaU82VGtqeDBieFdtaUVKVFh6OHc&hl=en

Tuesday, June 1, 2010

Monday and Tuesday

Yesterday was amazing. Sometimes it feels like things are just so hard for Kathy that she couldn't possibly go on an adventure but she continues to surprise us.

Monday we set out around noon to meet with the Putnam Land Conservancy board/members at the property that Kathy has been working so hard to acquire. She spoke for quite a while with about what had been done for the project and what was still outstanding. She has devoted herself for a couple of years now to this this conservation project and she is really disappointed that it is so close to fruition and she may not live to see it completed. Being able to visit the property and speak to everyone was a relief to her. One less thing to worry about and you know how she is.. she is still continuing to take care of everything.

While I was speaking on the phone to her today she stopped and asked her sister what she was looking for and then Kathy told her - third drawer on the left. She is still the leader and we are still her gang trying to keep up with her.

Today the team met with Dr. Dunbar about whom we have heard wonderful things. Kathy confirmed that it was all true. She is going to take over Kathy's care and is happy with that. Kathy is hoping that she goes soon and peacefully. None of us want her to go but we do want her to be happy and peaceful.

The hospice nurse was over today and things are getting a little more organized and peaceful.

Caroline is bringing over cupcakes with oreo sunflowers on them.

Christy is bringing chicken jambalaya for dinner for them tomorrow.

If you feel like cooking up a meal for the gang, let us know. I am trying to set it up for every other day... dinner for 8. We usually try to have it there by 6pm.